Black Tie Event for World Down’s syndrome week!

Black Tie Event for World Down’s syndrome week!

Join us for an evening of glitz and glamour to celebrate the finale of World Down’s Syndrome Week and the work of 21 Together.

We are hosting a black tie event to raise much needed funds to support the vital work that 21 Together does with the whole Down’s syndrome community. Providing specialist courses, awareness sessions, parent support, direct interventions with our children and young people; relies on the amazing support we receive from you all.
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Without a doubt, 21 Together is only able to provide the help and support needed because of the generosity of our supporters. Your kindness has allowed us to help so many families and young people. We can be there for families at the toughest of times and celebrate the achievements of their children and young people. Those moments that may seem tiny to some, can feel huge for our familie. We bring the community together for support and celebration. Our families face so many challenges; there are desperately hard times, but there also moments of joy. Seeing our children and young people overcome their challenges and making great leaps in independence just shows how important your support has been over the last two years. The team have had the priviledge of being part of so many special moments and that is all down to the amazing support we have had from individuals and our corporate supporters. You are all very much part of team 21 Together, without you none of this could happen.
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It promises to be a fun-filled night, a time to celebrate the success of the last few years, and we would be honoured if you could join us.
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When and Where:
Saturday 23rd March
Village Hotel Maidstone
Forstal Road
Maidstone
ME14 3AQ
6:30pm Red Carpet and Reception Drinks
1:00am Carriages
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Tickets:
Tables are available to purchase through the website and seat up to 12 people. Individual tickets can be purchased at £70 per ticket by emailing admin@21together.org.uk.
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Tickets Include:
Reception Drink
Three Course Meal including half bottle of wine per person
Charity Auction
Live Band

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How and What to Donate

Not everyone will be able to make it to the night. But don’t despair, you can still be part of the night! We are looking for donations of awesome prizes for our on the night auction/raffle or if you would just like to show your support you can head to our giving page via the link: https://uk.virginmoneygiving.com/21Together.
We look forward to seeing you there.
To book you table just head to the booking page.

Parallel London

Parallel London

Join 21 Together at Parallel London this September

 What is Parallel London?

Parallel London is the world’s first fully inclusive mass participation event. Parallel London is designed for all ages and abilities; anybody can take part in one of the five distances (10km, 5km, 1km, Super Sensory 1km, 100m) and is set in the majestic Queen Elizabeth Olympic Park.

Parallel London is a fully inclusive event and is not just for people who have a disability. Events are push or run events so are fully inclusive of children or adults who are unable to walk. There really is something for everyone.

For more information about Parallel London click here www.parallellondon.com

As well as the 5 distance events going on there is also a huge family festival taking place. The festival is free, for more information visit parallellondon.com/the-festival/

When is Parallel London?

It is on Sunday 3rd September 2017

How is 21 Together joining Parallel London?

We are very proud to announce that as a charity we have signed up to Parallel London. With your help, we are putting together a team of children, families, friends and colleagues to take part in this fantastic event. This is a brilliant opportunity for us all to come together, have a fun day out and fundraise for 21 Together.

We are giving tickets away for this event. In return all we ask is that you raise a minimum of £50 sponsorship per family or £25 per place. We hope people can try and raise as much as possible to support our work providing super low cost training, therapy groups and coffee mornings to our community. Each day of therapy we run costs approximately £700, all the admin and on the day help is done by volunteers. To be able to continue funding this type of support we need our whole community to get behind us and help us reach our goals. After all, we are all in this together.

Please don’t book via their website as we have already purchased the tickets for team 21 together.

Be part of Team 21 Together! What you need to do:

  1. Set up your own Virgin Giving Fundraising Page by clicking here Set up my Virgin Giving Page This is simple to do – honestly!
  2. Email us at info@21together.org.uk and let us know how many adults, how many children and how many under 5’s will be attending and include the link to your fundraising page.
  3. We will then email you a link so you can sign up for the distance/s of your choice.
  4. Get as many of your family members, friends and colleagues to join Team 21 Together. Bring your friends from school work and home. They too can set up a Virgin Giving Page exactly like you did and can join us on the day.

If you do not want to use the virgin money giving page then please contact us for details of how to take part. If you prefer to use paper sponsorship forms then you can download these here. Click here to download.

Lets show the world that our loved ones with Down’s syndrome are not an isolated group of people but part of a complete and vibrant community.

 

As Parallel London is fast approaching we wanted to share some of the final details. 

Your Race Pack
You will be receiving your race pack in the post from Tuesday 29th August, this will contain your race number and timing device.

 

Getting to Queen Elizabeth Olympic Park 
Parallel London’s start/finish area and festival is located in the south side of the Park, on the South Lawn, opposite the Arcelor Mittal Orbit sculpture.

By Tube or Train 

The nearest train, tube and bus stops are at Stratford and Stratford International, both of which provide step-free access from entrance to platform. If you are travelling across or from Central London, we recommend using the Jubilee Line.
It’s approximately a 15-min walk to the start line and festival site from Stratford Station and we’ll be providing an accessible shuttle service from the station for those who wish to use it. If you decide to walk from the station, there’ll be volunteers stationed along the route should you need any help with equipment or directions.Accessible shuttle from jubilee platform at Stratford station
Our accessible shuttles, which have wheelchair lifts, will meet participants and spectators at the Jubilee platform 13 and drop them at the start line/festival site. This service is brought to you by Ealing Community Trust and will be on hand to return you to the station after you have enjoyed the challenges and the free family festival.

Visiting by car or coach
Queen Elizabeth Olympic Park is 30 minutes from the M25 however parking is extremely limited at QEOP. We have a small amount of blue badge parking spaces available located behind the London stadium. To reserve your space please email contact@parallellondon.com with your name registration number, vehicle type and contact number.

There is also a multi-story car park situated 15 minutes’ walk/push from the site at Westfield Stratford City, E20 1EJ. Westfield Stratford City car parks A, B and C have blue badge bays. Over height blue badge vehicles up to 2.4m maximum height can park in the blue badge area of Car Park A on the Lower Ground Floor (Level P1). Car park B is located closest to site.

Race Times
Participant registration will open at 8.00 am
Make sure you get to the coloured start area in good time.

• Participants for the 10km will set off at 10.00am from the black start area
• Participants for the 5km will set off at 11.00am from the blue start area
• Participants for the 1km will set off at 11.30am from the orange start area
• Participants for the 1km Super Sensory Run will set off at 12.00am from the yellow start area
• Participants for the 100m will set off at 12:40pm from the green start area
The Route
After the Race 
You will receive your medal and T-shirt after the race and we hope you’ll make the very most of the day enjoying  the free festival, running from 9.30am to 4.00pm.

Coffee Mornings

Coffee Mornings

Taking time for you.

 

How many of us are guilty of making everything about everyone else in our lives?

Having a person with Down’s syndrome within the family can mean that our needs as parents can get forced to the bottom of the list. Just over a year ago, four friends got together and talked about what we wanted the charity to be, whom it would serve and how it would work. What came across to us was that we were all searching for something that put parents and carers at the forefront. A charity that worked for them and their loved ones. What we valued about our time together, as adults, was a vital space to share and support each other. Creating 21 Together gave us the space to be with other people who understood our world, we didn’t need to clarify anything we said, or worry that people understood the context of our gripe. We could truly celebrate those proud moments and when times were tough, people really understood what we were going through. That moment when one of the team would say ‘how are you’ and we can answer completely honestly and know they will not stand in judgement.

 

It is important to us, to provide support for everyone in our community. We want to create a space where we can come together to share our stories, share our lives and sometimes not share at all. A place where we can talk about our loved ones, or simply talk about the latest Big Brother eviction. A time that can be whatever the community needs it to be.

 

Team 21 Together

So come and join us at our first 21 Together coffee morning, a time to come and see what it is all about. A time to let us know what you, as a community would like us to do next. A great opportunity to feedback your views to the charity.  Now, having said this time is all about parents and carers, we know all too well (some of us still have pre-schoolers at home) that some of you will still have children at home and we encourage you to bring them along. We will have some toys dotted around and children are encouraged to play while you chat.  If your children are at school, college or all grown up, then come along and enjoy the time to meet with friends.

VENUE: Godmersham & Crundale Village Hall.

DATE: Wednesday 22nd February  from 10am until 12noon

 

Let us know if you can make it on the Facebook Event or email us info@21together.org.uk so we make sure the biscuits aren’t in short supply! If you can’t let us know then just turn up on the day.

Charity Lunch Success

Charity Lunch Success

image3Big thanks to Jane and Alastair, Sarah’s lovely parents-in-law, who hosted a fundraising lunch for 50 of their friends at their home in Grafton Underwood. Everyone had a great time and they raised a phenomenal £1500.

 

21 Together relies on our community helping us to raise funds to ensure we can keep providing high quality, affordable and local training for everyone that supports a person with Down’s syndrome.  As well as your help to keep building and delivering our awareness campaigns. We are hoping to expand our univeristy sessions into early years and education as well as midwifery.  It means that we can move forward and explore new ways of supporting our community. There is so much we can do to raise expectations within our community and to build awareness outside our community. However, to succeed we need YOUR support.

 

If you feel you could help us raise funds then please see the fundraising page for more information about how you can help.

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New date for Early years and primary education course

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AMAZING NEWS!

Due to popular demand we have added an additional date to our Early Years and Primary Education course in September in Canterbury. DON’T MISS OUT, places are filling up fast!

We are excited to say we have had such an overwhelming response to our Early Years and Primary Education course, that we had to turn people away. With a large waiting list, team 21 Together sat down to decide what to do.

When we started 21 Together we had a vision where everyone could access the vital training needed to support people with Down’s syndrome. Having a list of people who were going to miss out just doesn’t sit well with us. So, we have stepped up, rushed around and organised a second date. Please join us on Wednesday 21st September 2016 at Hall Place Enterprise Centre, Harbledown, Canterbury, Kent, CT2 9AG for a great day learning how to support children with Down’s syndrome through early years and primary school.

Our fabulous secretary Helen who handles all the applications is spinning around in circles to make sure everyone can get booked on.  Team 21 Together wanted to take this chance to thank Helen for all the hard work that goes on behind the scenes to make these courses come together. Don’t miss out again and sign up now!

Helen Willcox

 

HELEN WILLCOX

Secretary Extraordinaire

 

 

 

Midwife Awareness Session

we need you

21 Together are working hard in the local community to raise awareness and to truly effect change within areas like health, education and social care. We are running a programme in partnership with Canterbury Christchurch University to raise awareness of the positive impacts of people with Down’s Syndrome but also their needs and the needs of those who support them.

Most of us will have that moment of diagnosis imprinted on our souls forever, some of us have great stories to tell. Compassionate midwives and doctor’s, well informed and patient professionals who led us through a difficult time. Some of us have different stories to tell. Professionals who fell short or just plain didn’t know what to do.  Was the moment of diagnosis rushed, did you feel unsupported? Those moments can never be re lived. Those emotions are with us forever. We have worked with professionals and families and what is very clear is that we all want to get it right; but how?

That is why WE NEED YOU! As part of our awareness campaign 21 Together is running a session for undergraduate midwives at Canterbury Christchurch University. The session is based around parents sharing their own personal story in any way they wish. We discuss what we were like before we had a diagnosis, how we were given a diagnosis, what that diagnosis meant to us, what does our journey look like. We also appreciate if people can share a bit about what their life is like now. We want to give the professionals a real idea of what our loved ones can achieve and what a positive impact they are on our lives. However, we also want people to know the harder things, the things that make it tough. If we want professionals to truly understand what we as families need then they need the whole truth. 21 Together do not hold any stance on peoples own choices during this difficult time, we believe that every individual should make their own choice. BUT. We are passionate that those decisions are made with all the information, not decisions made out of fear!

Can you help us to help the professionals of the future really understand what our lives look like and how they can help us? If there was one thing you could go back and tell the professionals who worked with you, what would it be? Those parents who have already shared their stories come away feeling empowered, it’s not an easy thing to do but those who have already been part of the programme have said it was “cathartic”, “empowering”, “supportive” and “fulfilling”. We ask that everything said in the session is confidential so people feel they are able to share the more delicate aspects of their journey. We don’t judge, we listen and we hope with a variety of different journeys and different decisions we can make a real impact on the practice of the professionals of the future.

Our next session is on Monday 24th October 2016 10am-2pm and is being held at the Medway Campus. If you would like to come along then please email us at info@21together.org.uk or send us a message on the Facebook Page.

Working with the student midwives at Canterbury Christchurch University
Working with the student midwives at Canterbury Christchurch University
Kelly sharing her story
Kelly sharing her story

 

Jason Brown is taking on The Great North Run

Jason Brown is taking on The Great North Run

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Great North Run 2016

Jason Brown is supporting 21 Together by competing in the Great North Run

Jason is competing in the Great North Run on Sunday 11th September 2016 to raise funds for 21 Together to support our work.  Jason is the proud father of two wonderful children, Harry and Maeve. Harry is an incredible little boy who also happens to have been born with Down’s syndrome.

The Great North Run is the UK’s biggest half marathon which has full TV coverage. It is 13.1 miles long, and is run from Newcastle to Gateshead.  If you tune in you might actually spot Jason! He has been training hard at every opportunity and he would love to beat the two hour mark.

Please support Jason on his run by DONATING here.

Thank you Jason for your amazing support and we wish you the best of luck.

If you would like to do an event to support 21 together then please get in touch on info@21together.org.uk or just set up an online fundraising page.

 

 

Growing Up – Puberty, Sexuality, Relationships and Age Appropriate Behaviour

Growing Up – Puberty, Sexuality, Relationships and Age Appropriate Behaviour

GREAT NEWS

Feedback told us that our members wanted a course on puberty, sexuality, relationships and age appropriate behaviour. So team 21 Together went about finding the perfect course. This course will cover lots of aspects including puberty, however even those with younger (school age) children will find it useful as it explains all the early building blocks to put in place to make these life transitions easier.  This course is solely for parents, carers and home support workers so people can chat about their own experiences and support each other through these sometimes tricky times. Come along for some great professional advice over a cuppa. Limited places available so sign up now.

Logo Downs Ability

 

Course: Growing Up – Puberty, Sexuality, Relationships and Age Appropriate Behaviour.

(Please note this course is for parents, carers and home support staff only)

Date: Sunday 9th October 2016

Time: Registration from 9.30am-10am. Course starts at 10am and finishes at 2pm

Venue: Canterbury Christchurch University, Room NT09, Newtown Building, North Holmes Road, Canterbury, Kent, CT1 1QU. Parking is available free of charge either on site or in the road

Cost: No charge. Members will be given priority. You will be able to buy a light lunch in the college coffee shop.

Trainer: Cecilie Mackinnon from Downs Ability

Course Details:

Understanding the importance of starting early on helping children to understand about bodies, boundaries and appropriate social behaviuor. Practical ideas and resources to enable children to develop healthy, safe relationships and enjoy good self-esteem and an active social life.

Click here to book your place.

Don’t forget to become a member. Although courses are open to non-members, members will be given priority so we cannot confirm your place until nearer the date to ensure our members get their place. Membership is free and we have a variety of different membership options including, parent/carer, professional, person with Down’s syndrome etc.

21 Together launch success.

21 Together launch success.

We are proud to announce that our recent Launch day was a huge success.

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We had great fun in the main room with food, crafts and biscuit making followed by information and a quick opening speech from our Trustees. A few tears were shed as we officially launched 21 together.

 

 

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The sponsored walk was a hit with the families and everyone loved their treasure at the end. Even some of our super young walkers managed the whole route on foot. Great work guys!

 

 

 

 

The whole team would like to thank everyone involved, those who gave their time to help on the day, the businesses who helped us with prizes, everyone who donated or arranged sponsorship and the people who came to support us including Canterbury Christchurch University and Mid Kent College.

 

T21Together-11he day ended perfectly with some beautiful cakes, face painting and fun in the park. The weather was amazing and we are so thankful to everyone who donated the super scrummy cakes. The face painting was a hit and a big thank you goes to Julie and Sarah for helping us out. Lastly our beautiful photographs were taken by Jurgita Barton in her own time and we are super grateful for all the work she has put in not only at launch but before.

 

We still have some final accounting to go but our rough fundraising for the day in total is around £5000

That means we can go on to start booking our next set of courses for parents, carers and professionals so keep your eyes peeled for news on upcoming events.

Zumbathon

Zumbathon

Fabulous Zumbathon Event

A massive thank you to Isha Quee who is leading a team for a sponsored Zumbathon on the 12th June.  If you like to get your groove on whilst keeping fit then why not join her! Check it out here. Or support Isha by donating here. For more info just contact us at info@21together.org.uk.

 

If you have any fundraising ideas and want to support us please get in touch and we will do everything we can to help.